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  • Welcome to the MGH FTD Unit

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    The MGH Frontotemporal Disorders (FTD) Unit has at its core a multidisciplinary clinic in which comprehensive evaluations are performed for the purposes of diagnosis, treatment, and monitoring.

    The evaluation typically involves a neurologic assessment, neuropsychologic assessment, speech and language assessment, and potentially additional assessments by neuropsychiatry and social work. There are often tests ordered as well as brain scans and similar procedures. The evaluation is tailored to the individual, but many of these components are performed with each person.

    Typically, one or more persons who know the patient well are interviewed in detail to find out more about the symptoms that are present in daily life. This is often done initially as a telephone intake and subsequently in person during one or more visits.

    At the clinic evaluation, a behavioral neurology/neuropsychiatry fellow (a neurologist or psychiatrist in advanced training focusing on dementia and related conditions) will obtain the history in detail, performan an examination of the patient, review records, and together with one of our faculty neurologists will make recommendations for further evaluation if necessary. For many patients, a speech-language pathologist or trainee will also evaluate the patient and/or interview the care partner. A member of our care partner support team will meet with the family member(s) or other care partner(s).

    The various specialists who perform the evaluations then will discuss the results together as a team and try to come to a consensus regarding the diagnosis, and will also make recommendations for treatment, management, planning, and monitoring.

    Ongoing care can then be coordinated by the MGH FTD Unit or in conjunction with specialists who have already been working with the patient.

    To inquire about an appointment, email us at MGHFTDUnit@mgh.harvard.edu or call 617-726-1728.

    The MGH FTD Unit aims to develop better knowledge about and diagnosis and treatment of all forms of FTD and related focal dementia syndromes. The PPA Program aims to better understand and treat primary progressive aphasia syndromes using existing technologies (including speech therapy) and by developing new diagnostic and treatment technologies.

    To obtain medical records, please follow the directions below:

  • For written records including reports on clinic visits, follow this link.
  • For CDs with MRI or PET scans, follow this link or this link.
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    Records

    To obtain medical records, please follow the directions below:

  • For written records including reports on clinic visits, follow this link.
  • For CDs with MRI or PET scans, follow this link or this link. Or the following telephone number in Radiology can be used: 617-726-1798. The fastest way to obtain a CD with MRI or PET scan is to use the second web link and fill out the form or call the phone number, and the CD will usually be ready for pick up within 24-48 hours.
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