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    In June 2014, we said a fond farewell to Dr. Kimi Domoto-Reilly and Dr. Simon Ducharme. Dr. Domoto-Reilly is moving to University of Washington Seattle to start her own program on FTD and early-onset/atypical dementias. She worked with us for 6 years and we will sorely miss her! Dr. Ducharme has been with us for 2 years and is moving to the Montreal Neurological Institute to start his own FTD and related disorders program. We will miss both of you and look forward to continuing to work together to try to conquer these diseases.
    • Click here to read the front page New York Times article on FTD, May 6 2012

    • Our colleagues at the Mayo Clinic and UCSF identified a new gene for FTD and ALS, helping to explain how both conditions can sometimes run in one family. Estimates suggest that this gene, on chromosome 9, may explain about 12% of familial FTD and up to 22% of familial ALS. It is not yet possible to test for this mutation in individuals, but we will update you with information about this possibility as it develops. Read more here.
    • Thanks to more than 60 family members and caregivers for attending our MGH FTD Unit Research Update; click here for slides and to read more about it.
    • Our scale for measuring language impairments in primary progressive aphasia (PPA) was published in 2010 in the journal Neurology; click here for more information.
    • Contact for more information about the monthly Boston-area FTD caregiver support group meeting.
    • Visit the Association for FTD website

    • Other news  

Welcome to the MGH FTD Unit

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Welcome to the MGH Frontotemporal Disorders (FTD) Unit, a comprehensive clinical-research unit focused on Frontotemporal Degeneration and related disorders, including Primary Progressive Aphasia (PPA), Semantic Dementia, Corticobasal Degeneration Syndrome (CBD), Progressive Supranuclear Palsy (PSP), Posterior Cortical Atrophy (PCA), and related disorders.

The MGH FTD Unit aims to develop better knowledge about and diagnosis and treatment of all forms of FTD and related focal dementia syndromes. We provide comprehensive clinical services related to FTD, including diagnostic assessment, second opinions, comprehensive treatment recommendations, education and counseling, and ongoing monitoring. In addition, specialized services are available in partnership with other local providers when relevant, including genetic counseling and testing, neuropsychological assessment, social work services, occupational/speech/physical therapy, neuropsychiatry, sleep, vision, and hearing assessments. We work in close partnership with other clinicians in the area (including Brigham & Women's Hospital, Beth Israel Hospital, Jamaica Plain VA Aphasia Research Center, and others). In addition, we work in close partnership with the Association for FTD and the Alzheimer's Association.

We are happy to discuss specific situations over the phone or by email to determine if a referral is appropriate. Please read our introductory brochure for more information.

We also perform a variety of research that we hope will contribute to better understanding of these disorders, earlier and more precise diagnosis, better prognostication and monitoring, and ultimately treatment.

The PPA Program aims to better understand and treat primary progressive aphasia syndromes using existing technologies (including speech therapy) and by developing new diagnostic and treatment technologies. We also provide education and counseling related to PPA. Information for clinicians and researchers on our Progressive Aphasia Severity Scale is available here.

The PCA Program aims to better understand and treat posterior cortical atrophy (PCA) using existing and new technologies and by developing new diagnostic and treatment techniques. We also provide education and counseling related to PCA.
If you would like to discuss the possibility of scheduling an evaluation in our clinic with Dr. Dickerson or Dr. Domoto-Reilly, call Brianna O'Connell at 617-726-1728. If you are a patient who has been seen at the MGH FTD Unit and would like information on obtaining medical records, click above on the "clinic" link and/or call Brianna O'Connell at 617-726-1728. For medication related information, contact Brianna O'Connell.

Our research is generously funded by the National Institute on Aging, the Alzheimer's Association, and private donors.

Thank you very much to everyone who participated in the Diane Carlson Memory Dance on Saturday, March 19, 2011. We greatly appreciate each of your efforts, and especially the dedicated efforts of JoAnne Horigan, Diane's sister, who organized the event. Read more about it here

For further information, contact us at by email at or by telephone at 617-726-5571 (ask for Daisy Hochberg).

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Future Events
9th International Conference on Frontotemporal Dementia
Vancouver, BC
October 23-25, 2014
Dr. Dickerson and colleagues will present new research on FTD and PPA.

Past Events
International Conference on Alzheimer's Disease
July, 2013
Boston MA
In addition to research on Alzheimer's disease, this conference featured a variety of types of research on FTD and related disorders. Dr. Dickerson and Dr. Domoto-Reilly presented our team's research.

Harvard's 17th Annual Dementia Course
May 29 - 31, 2013
Dr. Dickerson co-directed this year's 17th annual Harvard Dementia Course for health care professionals.

2011 FTD Conference
Marriott Hotel, Cambridge, MA
June 10, 2011
See the AFTD website for more information on this conference which includes an afternoon session for caregivers; visit the AFTD website to register. Read more about it here.

American Academy of Neurology
April 9-15, 2011
Daisy Sapolsky and Drs. Domoto-Reilly, McGinnis, and Dickerson presented new research and other topics at the annual American Academy of Neurology meeting AAN meeting.

Diane Carlson Memorial Dance to benefit Dementia Research
March 19, 2011

FTD Research Update
Charlestown, MA

March 11, 2011

Other conferences of interest