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  • Fall 2018: Thank you to everyone who attended our 4th annual gala--you made it a wonderful evening and very successful community fundraising event!
  • Fall 2018: Katie Brandt, our FTD Unit's Director of Caregiver Support and Public Relations, was quoted in an excellent NPR story on Dr. Helen Kales' DICE approach to behavioral symptom management in patients with dementia; our pilot study of DICE in FTD is ongoing.
  • Summer 2018: We welcomed a number of new team members, including behavioral neurology/neuropsychiatry fellows Drs. Neguine Rezaii, Amy Newhouse, and Mahdi Razafsha, as well as Dr. Sheena Dev, neuropsychology post-doc. We said a fond farewell to behavioral neurology fellow Dr. Shan Siddiqi and to Haroon Popal and Sara Makaretz.
  • Spring 2018: Welcome to Calaya Byrd, our new MGH FTD Unit Patient Services Coordinator! Calaya is our front-line team member who schedules appointments and coordinates other activities in our clinic. We will miss Nordia McBean who moved on to another position; thank you for your outstanding contributions, Nordia!
  • Other news  
  • Welcome to the MGH FTD Unit

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    Welcome to the MGH Frontotemporal Disorders (FTD) Unit, a comprehensive clinical-research unit focused on Frontotemporal Degeneration and related disorders, including Primary Progressive Aphasia (PPA), Semantic Dementia, Corticobasal Degeneration Syndrome (CBD), Progressive Supranuclear Palsy (PSP), Posterior Cortical Atrophy (PCA), FTD-ALS, and related disorders. We also work very actively in the FTD Unit with patients and families with young-onset and atypical forms of Alzheimer's disease.

    The MGH FTD Unit aims to develop better knowledge about and diagnosis and treatment of all forms of FTD and related focal dementia syndromes. We provide comprehensive clinical services related to FTD, including diagnostic assessment, second opinions, comprehensive treatment recommendations, education and counseling, and ongoing monitoring. In addition, specialized services are available in partnership with other local providers when relevant, including genetic counseling and testing, neuropsychological assessment, social work services, occupational/speech/physical therapy, neuropsychiatry, sleep, vision, and hearing assessments. We work in close partnership with other clinicians in the area (including Brigham & Women's Hospital, Beth Israel Hospital, Jamaica Plain VA Aphasia Research Center, and others). In addition, we work in close partnership with the Association for FTD and the Alzheimer's Association.

    We are happy to discuss specific situations over the phone or by email to determine if a referral is appropriate. Please read our introductory brochure for more information.

    We also perform a variety of research that we hope will contribute to better understanding of these disorders, earlier and more precise diagnosis, better prognostication and monitoring, and ultimately treatment.

    We also conduct the MGH FTD Family Study focusing on symptomatic and asymptomatic individuals in families in which FTD affects more than one member.

    The PPA Program aims to better understand and treat primary progressive aphasia syndromes using existing technologies (including speech therapy) and by developing new diagnostic and treatment technologies. We also provide education and counseling related to PPA. Information for clinicians and researchers on our Progressive Aphasia Severity Scale is available here.

    The PCA Program aims to better understand and treat posterior cortical atrophy (PCA) using existing and new technologies and by developing new diagnostic and treatment techniques. We also provide education and counseling related to PCA.

    If you would like to discuss the possibility of scheduling an evaluation in our clinic with Dr. Dickerson or Dr. Eldaief or Dr. Perez, call 617-726-1728. If you are a patient who has been seen at the MGH FTD Unit and would like information on obtaining medical records, click above on the "clinic" link and/or call 617-726-1728. For medication related information, contact this same number.

    Our research is generously funded by the National Institute on Aging, National Institute for Mental Health, National Institute of Neurological Disorders and Stroke, National Institute of Communication Disorders and Deafness, the Association for FTD, the Krupp Foundation/Tom Rickles Fund, Tau Consortium, and private donors.

    For further information, contact us at by email at MGHFTDUnit@partners.org or by telephone at 617-726-5571 (ask for Raseeka O'hander, Program Manager). Contact ftd.boston@gmail.com for more information about the monthly Boston-area FTD caregiver support group meeting.

    Click here to read our newsletters.




    Future Events
    Past Events
    We were honored that many of you joined us at our 7th annual FTD Unit Education Day on April 6 2018.

    Harvard's 22nd Annual Dementia Course
    May 30 - June 2, 2018
    Dr. Dickerson and Dr. Atri co-directed the 22nd annual Harvard Dementia Course for health care professionals, and were delighted to welcome luminaries in the FTD field to our program, including Drs. Sandy Weintraub, Marsel Mesulam, and Bruce Miller.
    Katie and Noah

    Thank you to Katie Brandt for telling her story to raise awareness and funds to fight FTD!