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Katie and Noah

Thank you to Katie Brandt for telling her story to raise awareness and funds to fight FTD! Click here to read more about Katie's remarkable story.

News
  • Fall 2016: Megan Quimby and Katie Brandt presented a summary of our speech-music support group, conducted in partnership with Joyce Shapiro Gordon, MedRhythms team members, and Berkeley Professor Kathleen Howland, at the International Conference on FTD in Munich. Jessica Collins also presented the results of our collaboration with UCSF on the onset and progression of semantic variant PPA
  • Summer 2016: We welcomed Kay Sweeney, Sam Krivensky, and Haroon Popal as new research assistants on our team. We said a fond farewell to Christina Caso and Mike Stepanovic, and to Drs. Joel Salinas and Alessandro Biffi.
  • Spring 2016: We held are 5th FTD Unit Caregiver Education Day with approximately 100 attendees in Waltham MA.
  • Fall-winter 2015: Megan Quimby, Katie Brandt, Joyce Shapiro Gordon--in partnership with MedRhythms Inc and music therapist, speech pathologist, and Berkeley Professor Kathleen Howland--ran our second highly successful PPA support group over a series of weekly sessions.
  • October 2015: Thank you to Sybil and Kemon Sermos and the other members of our first FTD Unit Gala Fundraising team for their heroic efforts to bring our community together to raise money to support more research and care programs in the MGH FTD Unit! Click here to read more about it.
  • Other news  
  • Welcome to the MGH FTD Unit

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    Welcome to the MGH Frontotemporal Disorders (FTD) Unit, a comprehensive clinical-research unit focused on Frontotemporal Degeneration and related disorders, including Primary Progressive Aphasia (PPA), Semantic Dementia, Corticobasal Degeneration Syndrome (CBD), Progressive Supranuclear Palsy (PSP), Posterior Cortical Atrophy (PCA), FTD-ALS, and related disorders.

    The MGH FTD Unit aims to develop better knowledge about and diagnosis and treatment of all forms of FTD and related focal dementia syndromes. We provide comprehensive clinical services related to FTD, including diagnostic assessment, second opinions, comprehensive treatment recommendations, education and counseling, and ongoing monitoring. In addition, specialized services are available in partnership with other local providers when relevant, including genetic counseling and testing, neuropsychological assessment, social work services, occupational/speech/physical therapy, neuropsychiatry, sleep, vision, and hearing assessments. We work in close partnership with other clinicians in the area (including Brigham & Women's Hospital, Beth Israel Hospital, Jamaica Plain VA Aphasia Research Center, and others). In addition, we work in close partnership with the Association for FTD and the Alzheimer's Association.

    We are happy to discuss specific situations over the phone or by email to determine if a referral is appropriate. Please read our introductory brochure for more information.

    We also perform a variety of research that we hope will contribute to better understanding of these disorders, earlier and more precise diagnosis, better prognostication and monitoring, and ultimately treatment.

    We also conduct the MGH FTD Family Study focusing on symptomatic and asymptomatic individuals in families in which FTD affects more than one member.

    The PPA Program aims to better understand and treat primary progressive aphasia syndromes using existing technologies (including speech therapy) and by developing new diagnostic and treatment technologies. We also provide education and counseling related to PPA. Information for clinicians and researchers on our Progressive Aphasia Severity Scale is available here.

    The PCA Program aims to better understand and treat posterior cortical atrophy (PCA) using existing and new technologies and by developing new diagnostic and treatment techniques. We also provide education and counseling related to PCA.

    If you would like to discuss the possibility of scheduling an evaluation in our clinic with Dr. Dickerson or Dr. Eldaief or Dr. Perez, call 617-726-1728. If you are a patient who has been seen at the MGH FTD Unit and would like information on obtaining medical records, click above on the "clinic" link and/or call 617-726-1728. For medication related information, contact this same number.

    Our research is generously funded by the National Institute on Aging, National Institute for Mental Health, National Institute of Neurological Disorders and Stroke, the Association for FTD, the Krupp Foundation/Tom Rickles Fund, Tau Consortium, and private donors.

    For further information, contact us at by email at MGHFTDUnit@partners.org or by telephone at 617-726-5571 (ask for Raseeka Premchander). Contact ftd.boston@gmail.com for more information about the monthly Boston-area FTD caregiver support group meeting.

    Click here to read our newsletter.



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