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We hope you enjoyed our annual FTD Education Day.

News
  • Spring 2018: Welcome to Calaya Byrd, our new MGH FTD Unit Patient Services Coordinator! Calaya is our front-line team member who schedules appointments and coordinates other activities in our clinic. We will miss Nordia McBean who moved on to another position; thank you for your outstanding contributions, Nordia!
  • Fall 2017: Congratulations to Katie Brandt who was selected for membership on the national Advisory Council on Alzheimer's Research, Care, and Services. Read more about it here. We are all very proud of this important accomplishment! Katie is joined on the committee by Dr. Brad Hyman, director of our Alzheimer's Center.
  • August 2017: We said a fond farewell to behavioral neurology fellow Dr. Saurabh Sharma and a warm welcome to behavioral neurology fellow Dr. Shan Siddiqi.
  • July 2017: Members of the MGH FTD Unit presented new research and the Alzheimer's Association International Conference in London.
  • Other news  
  • Welcome to the MGH FTD Unit

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    Welcome to the MGH Frontotemporal Disorders (FTD) Unit, a comprehensive clinical-research unit focused on Frontotemporal Degeneration and related disorders, including Primary Progressive Aphasia (PPA), Semantic Dementia, Corticobasal Degeneration Syndrome (CBD), Progressive Supranuclear Palsy (PSP), Posterior Cortical Atrophy (PCA), FTD-ALS, and related disorders.

    The MGH FTD Unit aims to develop better knowledge about and diagnosis and treatment of all forms of FTD and related focal dementia syndromes. We provide comprehensive clinical services related to FTD, including diagnostic assessment, second opinions, comprehensive treatment recommendations, education and counseling, and ongoing monitoring. In addition, specialized services are available in partnership with other local providers when relevant, including genetic counseling and testing, neuropsychological assessment, social work services, occupational/speech/physical therapy, neuropsychiatry, sleep, vision, and hearing assessments. We work in close partnership with other clinicians in the area (including Brigham & Women's Hospital, Beth Israel Hospital, Jamaica Plain VA Aphasia Research Center, and others). In addition, we work in close partnership with the Association for FTD and the Alzheimer's Association.

    We are happy to discuss specific situations over the phone or by email to determine if a referral is appropriate. Please read our introductory brochure for more information.

    We also perform a variety of research that we hope will contribute to better understanding of these disorders, earlier and more precise diagnosis, better prognostication and monitoring, and ultimately treatment.

    We also conduct the MGH FTD Family Study focusing on symptomatic and asymptomatic individuals in families in which FTD affects more than one member.

    The PPA Program aims to better understand and treat primary progressive aphasia syndromes using existing technologies (including speech therapy) and by developing new diagnostic and treatment technologies. We also provide education and counseling related to PPA. Information for clinicians and researchers on our Progressive Aphasia Severity Scale is available here.

    The PCA Program aims to better understand and treat posterior cortical atrophy (PCA) using existing and new technologies and by developing new diagnostic and treatment techniques. We also provide education and counseling related to PCA.

    If you would like to discuss the possibility of scheduling an evaluation in our clinic with Dr. Dickerson or Dr. Eldaief or Dr. Perez, call 617-726-1728. If you are a patient who has been seen at the MGH FTD Unit and would like information on obtaining medical records, click above on the "clinic" link and/or call 617-726-1728. For medication related information, contact this same number.

    Our research is generously funded by the National Institute on Aging, National Institute for Mental Health, National Institute of Neurological Disorders and Stroke, the Association for FTD, the Krupp Foundation/Tom Rickles Fund, Tau Consortium, and private donors.

    For further information, contact us at by email at MGHFTDUnit@partners.org or by telephone at 617-726-5571 (ask for Raseeka Premchander). Contact ftd.boston@gmail.com for more information about the monthly Boston-area FTD caregiver support group meeting.

    Click here to read our newsletter.



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    Future Events
    Past Events
    We were honored that many of you joined us at our 7th annual FTD Unit Education Day on April 6 2018. Click here to make an online donation.

    70th American Academy of Neurology Meeting
    April 21-28, 2018
    Dr. Dickerson and team presented new research and taught courses on PPA, FTD and Alzheimer Dementias.

    Harvard's 22nd Annual Dementia Course
    May 30 - June 2, 2018
    Dr. Dickerson and Dr. Atri co-directed the 22nd annual Harvard Dementia Course for health care professionals, and were delighted to welcome luminaries in the FTD field to our program, including Drs. Sandy Weintraub, Marsel Mesulam, and Bruce Miller.



    Katie and Noah

    Thank you to Katie Brandt for telling her story to raise awareness and funds to fight FTD! Click here to read more about Katie's remarkable story.