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  • Our colleagues at the Mayo Clinic and UCSF identified a new gene for FTD and ALS, helping to explain how both conditions can sometimes run in one family. Estimates suggest that this gene, on chromosome 9, may explain about 12% of familial FTD and up to 22% of familial ALS. It is not yet possible to test for this mutation in individuals, but we will update you with information about this possibility as it develops. Read more MGH FTD Unit Research Update; click here for slides and to read more about it.
  • Our new scale for measuring language impairments in primary progressive aphasia (PPA) was published in 2010 in the journal Neurology; click here for more information.
  • Read the summer 2010 AFTD newsletter here.
  • Contact ftd.boston@gmail.com for more information about the monthly Boston-area FTD caregiver support group meeting.
  • Read about our fall 2009 Boston-area FTD Caregiver Educational Conference here and schedule here. The turnout of 85 registrants (mostly family member caregivers, also friends, social workers, etc) was excellent and we all learned from each other.
  • Click here to read about our new paper on the "Cortical signature of Alzheimer's disease, published electronically in July 2008, Cerebral Cortex.
  • Other news  

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PBS Newshour segment on FTD In November, 2008, PBS aired a Newshour segment on treating dementia. Featured in this piece are patients, caregivers and experts discussing frontotemporal dementia. Dr. Bruce Miller of UCSF, among others, are featured. Click here for more information.

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We are an interdisciplinary team of clinicians and researchers who are dedicated to the belief that, through the application of scientific approaches, we will advance our collective understanding of brain function and dysfunction which will ultimately improve our ability to diagnose, monitor, and treat patients with FTD and related disorders.